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Month: April 2020

The gift that keeps on giving

The gift that keeps on giving

Why is it that every time I get an additional compound to relieve or mend side effects – that compound adds additional side effects? I have for three days gotten injections with growth factor to stimulate white blood cell growth – since my white blood cell count was too low last week. Additional side effects now are more fatigue, dizziness, sore throat and more hot flashes. Luckily I have not gotten bone pain – which was the side effect the…

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Grains of Rice

Grains of Rice

Guest blogger James here. Today there has been much debate over the size of rice grains. It’s not that we are losing our collective quarantine minds, but if you really look at them (and I did) then you start to see quite a bit of differences in rice grain size. And color. And shape. Anyway- it is important in our house as this is the calibration for RSO dosage for Stine. On days where she has low symptoms, she gets…

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Couch day

Couch day

Not much to say today either. I’ve been mostly flat on the couch today. Very tired. The neuropathy is not too bad this time. I’ve had a few hot flash episodes today – according to my oncologist they are due to the chemo and not lack of estrogen. When the hot flashes roam through me after a while it feels like none of my limbs or my head is screwed on right. Very uncomfortable.  After three days flat the dreadlock…

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Rest mode

Rest mode

Yesterday after getting the chemo infusion I did not get the same side effect kick as previous cycles. I got an 80% dose and I have found some side effect reducing tricks. Hard to say which has the greatest impact but it doesn’t matter as long as the side effects are milder. Today I am tired and low on energy. I have only had faint pain and cramps in my legs and a few mild cases of cramps and tingling…

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Getting closer

Getting closer

Tomorrow is the fifth time I get chemo infusion. Getting close to the last one – yay! I got the dressing on the picc line changed today and had my blood samples done. I still have a rash due to the glue on the dressing, but the last month I have had a different dressing (IV clear) to minimize the skin reaction. My white blood cell count (WBC) is still sinking, but it had not gone down as much as…

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